Wednesday, May 21, 2008

Carson Update


I haven't uploaded any of the most recent pictures of Carson at the hospital, so I decided to post my favorite picture of the back of his head... I love his curly hair! Between two days at the hospital and probably thousands of dollars later... we now know that we have to go to yet another specialist...(MORE specialized) at the U. This part of his diagnosis is only concerning his ears... (the other stuff will resume its testing in August). As for now, the E.N.T. determined that his inner ear hearing bones are severely deformed. He wasn't sure what could be done to help him hear as there aren't very many options to help when it's in the bone, so that's why we were referred to yet another Doctor. The appointment is in late June. I'm sure they will do more tests and then maybe we'll find out if they can help him hear. As of right now, Carson can hear about 20% out of both ears. He doesn't have complete hearing loss, but does have quite a bit. We kinda had a hunch that he had troubles hearing ever since he was born and are happy to finally have an answer. We hope this will aid the neurologist and geneticists in determining his overall diagnosis. As for now, we will keep watching signing time everyday and hope that we can pick up some of it!! :)

11 comments:

Jesicca said...

Good luck with yet another specialist. Carson is in our prayers!

Kristi said...

At least some headway has been made. I hope you all get the answers you need to help this cute boy grow strong! Oh, and I love the curly hair...McKinley has some too but only when it's wet! For the record we all love signing time in our house!

Hill said...

I'm glad that you have atleast gotten a few answers, and hopefully there are more to come.

The Shepherds said...

"signing time with Alex and Leah" LOL! We have the DVD's. They are cute! I'm so glad your computer is fixed. I was beginning to think you bummed out on blogging! I am glad that you are making progress with Carson. Even little by little helps.

Danielle Christiansen said...

It is nice you can finally get a few awnsers. I bet you will be so relieved when all the awnsers are given to you. What a little trooper he and you guys are. hang in there.

morgan said...

that curly hair is darling. what a cute little guy! good luck with everything, carson will be in my prayers!

Brittanie said...

Soner...love the curls.

Lynley said...

Oh! Bless his little heart! I'm glad you're starting to get some answers. His hair is so stinkin' cute! Zack is such a cutie too!

Dave and Annamarie Nielson said...

It's nice to know you have some kind of answers...atleast to start. you are all in our family prayers. I must say I am jealous of he his cute curly hair. I wish my kids had it!

Sara said...

I am glad to hear the latest on what is going on... I have wondered since I ran into you last... You are such a great Mom, Jess. What a great attitude and perspective you maintain. That is and will continue to be such a blessing to both Carson and the rest of yor sweet family. Good Luck with the new "specialist"... I will keep checking in for updates and send more thoughts and prayers your way! :)

Andy or Laisa said...

I love "Signing time" - Kolby didn't care too much for it, but the other 2 did. Good luck with the other tests, thanks for keeping us updated. He is a cutie & that curly hair is adorable. :D