Wednesday, June 11, 2008

Quick Update about Carson

After many hours of entertaining Carson in the doctor's waiting room, we finally got to see the doctor and he shed a little light on the subject of Carson's ears. Turns out that Carson never developed ear drums, his ear canals are completely collapsed and his inner ear bones are deformed. I guess it's no wonder he can't hear, right? OPTIONS?.... well, our best option is to undergo reconstructive surgery. That would include: removing the deformed bones and replacing them with prosthesis. Then they would drill a new hole behind his ear to make a new ear canal. Then graft skin from his hip to line the newly formed canal. Then also graft skin to make new eardrums. After all of this is done he should be able to hear normally. Hopefully. The only set back is that he has to be five years old before they will attempt the surgery. Until then, he will be fitted with a BAHA hearing aid that isn't anchored into the skull. Most BAHA aids are anchored, but he will be able to wear the "box" on a headband and have it sit just on top of his ear bone. The picture shows what a BAHA looks like implanted. It's pretty amazing that they have so many options to help these little guys hear. The BAHA was only recently approved in 2002. We're lucky to have options to help him. Another set back....? Insurance won't cover any of it. Should've known. Well, we'll just take it one day at a time.....

13 comments:

Hill said...

Wow! is it so nice to finally have some solid answers and solutions? Good luck with all of that,insurances suck.

Sara said...

Yea! REAL ANSWERS! And these sound like great solutions! That is wonderful news! THe insurance issue on the other hand... well, you could always vote for Obama... (kidding!) Carson won't be 5 for a few years... maybe Health Care will be reasonable or you will be RICH by then!

John and Jodi said...

Such a sweet family. Good luck to Carson we will keep your family in our prayers.

The Shepherds said...

This is great news, but at the same time seems overwhelming and hard to take. Sitting in waiting rooms is AWFUL!

Chuk and JoAnn Fife said...

Carson is blessed to have such a great Mom and Dad...and Zack for sure. We always pray for Carson and your family. Happy day and Mizpah, Gram and Gramps

Kristi said...

Nice to fins a resolution to all this after all the doctor hopping! Medical technology is amazing. Bummer about insurance - that gets me all fired up but I'll save it for another day!

Oh, and the kids had a BLAST in Parowan...Preston stayed an extra week! He also told my parents to register him for 1st grade at the Parowan school and he could see his mom and dad on his breaks! What a nut!

Jesicca said...

That is truly amazing news! It is incredible that you were finally able to find a Dr. that can answer your questions and find a resolution to the concerns. Good luck with insurance!!!

Danielle Christiansen said...

I am glad you guys are finally getting awnsers, but what a rough time for the little guy. It is so nice to have technology to help out these days. But expensive. My girls cost a million dollars just to be born. But if I was a pioneer we would have all died. I guess all blessings come at a price. Good luck!!

TerriLyn said...

That is such great news! Happy day to finally know! Yep, just take it a day at a time. You guys are awesome.

Lynley said...

It is good news that he will get to hear soon! You have such a positive attitude about all this. You are an inspiration!

Morgan said...

Wow. What an amazing process! You have always been one strong gal, you'll make it through! Your boys are lucky to have you.
Sometimes I do wonder what the point to having insurance is... ugh, frustrating. Good luck, I'll be thinking of you guys!

Hill said...

Hey I was just going to tell you that Marvelous catering did my cousins wedding in spanish on saturday (from the description my mom gave me of the guy doing it, it wasn't Jed) and everyone was raving about how good it was.

Kayla said...

That's amazing! Modern technology is great. I'm so glad that there are options for you.
PS: If you want an invite to my blog still, email me your email. it's kaylafornia83@gmail.com